We try to focus on the positives and all the amazing strides Amy continues to make. Unfortunately, there’s another side to brain injuries as well and not mentioning it isn’t doing justice for Amy or anyone else going through something similar.
This past week or so has been difficult for Amy mentally. She’s beyond done with fighting every day just to try and get back to being “normal”. Typically saying things like “I’m so done with this”. And I get it, she’s earned the right to be fed up. Fortunately she isn’t suicidal, but it’s still hard to see her struggle with her condition. She’s a warrior though and won’t let this beat her, and still still has many moments of laughter and enjoyment.
This is another way your contributions help us. I know for a fact that if I wasn’t able to be home with her she would be struggling even more. I say it all the time, but thank you again for all of your continued support, we literally couldn’t do this without you. Amy would not have made it this far and continue to improve without you. You are all amazing.
Amy, Jon and Parker
We couldn’t have moments like this without you, it’s just that simple. Your compassion and support for our family is one of the biggest reasons why Amy makes strides everyday. Unfortunately we desperately need your support still. As we crunch the numbers we realize that we have less than two months worth of funds left. Since we are still awaiting any kind of disability assistance I am facing needing to go back to work, yet have no idea how Amy will receive the daily care she needs. We are hopeful that she will eventually qualify for disability assistance which will take some burden off our shoulders. Until then it’s been very trying and stressful not knowing how we’re going to pay rent and other bills.
If you feel passionate about helping us advocate for her, we would appreciate that too. Anything that you can give is everything to us.
It’s not easy to ask for help, neither one of us is comfortable with it and would much rather be the ones giving. We can’t thank you all enough for all of the love and support we have received.
Amy, Jon and Parker
Hey everyone! It’s been a little while since our last update, life has been a bit hectic.
We wanted to share this video of Amy working on taking steps. She’s still got a long road ahead, but she’s come so far. There is so much fight in this woman it’s incredible. As you can see by this video she is still in need of full time assistance with everything. She’s getting better with eating but it’s still difficult to do on her own. Same goes for any kind of bathroom duties (I’m not going to get specific, but yeah, even that).
We are still (9 months and counting) waiting to see if Amy gets approved for disability. Maybe, just maybe, we might be a tiny bit closer to that becoming a reality but time will tell. We have, on the other hand, been approved for food stamps! We’re still looking for various other ways to generate income from home, and that’s still very much a work in progress. Any suggestions are welcome. We’ve also been able to lower our overall expenses/cost of living which has obviously helped.
In the meantime your donations have helped immensely. Every donation goes directly to either gas or bills/rent. (We use credit or any income we make from home for everything else). Since our last video update you all have generated enough to cover our rent for August. And those of you who are unable to donate, your sharing Amy’s story and gofundme page has helped raise more than you might realize. Everyone is making a big impact. We can’t begin to tell you how amazing that is, and how grateful we are.
Until next time,
Amy, Jon and Parker
Video of Amy working on taking steps!
We can’t say it enough, thank you all from the bottom of our hearts. If not for all of your continued donations and the times you’ve shared her story I’d be forced to go back to work. Because Amy DeNapoli is still in need of full time care, my working would mean that she would need to be in a nursing home. I am 100% certain that if she was in a nursing home there is no way she would have made the progress she has. You guys are literally helping her get her life back. It’s unbelievable.
She doesn’t feel like she’s making big progress, but she absolutely is. There’s still years of hard work ahead for her, but she’s heading in the right direction.
Thank you again, we’ll be posting another video soon.
Amy, Jon and Parker
I need to take some time to acknowledge just how amazing and strong Amy is. She’s been facing challenges almost her entire life, yet she has always found a way to keep pushing forward.
I’d like to share her story with those of you who aren’t familiar.
Her dad passed away in 1996 when she was 17. At 19 she was involved in a severe car accident when a semi truck merged into her, flipping her car and almost causing it to get pushed off an overpass. That accident resulted in an astrocytoma in her spinal cord, later requiring surgery. In 2002 when Amy was 23 her mom passed away, resulting in Amy taking custody of her sister Megan who was 13 at the time. (Side note, Amy and Jon met just one year later).
Come June 2017 the tumor in her spinal cord grew back to the point where she needed another surgery. By this time the nerve damage had resulted in Amy living with chronic pain and dealing with mobility issues on a daily basis. The surgery was incredibly risky, but had she not done it she would almost certainly had ended up paralyzed from the waste down.
Just over a year later (November 19th, 2018) is when Amy was involved in the accident that caused her traumatic brain injury, which she is still currently battling.
Despite all of these hurdles, Amy keeps going. She’s unstoppable. She’s a badass. She inspires so many people on a daily basis, like, truly inspirational.
Thank you all for caring for her so much, and for showing so much love towards her and the rest of our family. Of course, thank you also for all of the amazing contributions. We are still working on ways we can generate money from home, including possibly starting a YouTube channel (more on that soon). In the meantime we are continuing to ask for your assistance in spreading her story and her gofundme page. It helps more than we can ever truly express.
Amy, Jon and Parker
Click here for Amy’s GoFundMe site
As always we must begin this Amy update with a massive thank you for all of your support! We are getting closer and closer to our goal of $50,000 and we are so incredibly thankful and overwhelmed. We chose that amount because it will hopefully buy us time to allow Amy to recover enough to handle staying at home by herself so I can go back to work. I can’t say it enough but we would never be able to do it without you guys.
Amy had physical and occupational therapy today. She’s continuing to get more movement in her right hand and arm, and can almost make a fist with her right hand which is a pretty big step. She’s also making progress when it comes to holding up her entire weight while standing. She’s still got quite a way to go before attempting to walk on her own, but she’s heading in the right direction.
As fortunate and lucky as we are for her continued improvement, there are still challenges. We want people going through something similar to know that challenges are all part of it, you can’t let them stop you. We want to share a picture of one of the struggles Amy has to deal with. Although it looks like she’s just resting on the floor (thanks to Parker for giving her some pillows), she had actually fallen off the couch and was stuck in this position until I was able to come back in to help her up. I’m so grateful that she doesn’t have to go through this alone, I can imagine how difficult that would be for her.
Again, thank you all so much for everything. You. Are. The. Best.
You guys are amazing. We are so incredibly lucky to have all of you in our lives, all of your contributions are something that we are forever grateful for. Amy would like to thank you all herself, so she recorded a video to do just that.
I’m (Jon) currently working from home in order to generate as much supplemental income as possible, but as of now it’s not nearly enough to live off of. That’s how important your donations have been, they are literally helping pay rent, put food on the table and cover other every day expenses. Be it $5 or $1,500, each and every donation is a life saver.
We’re still trying to get disability (7 months and counting). As of right now the state doesn’t have enough information deem Amy disabled, which is absolutely mind boggling. Apparently this is a common occurrence, and I feel for those who have been through the same thing.
It is our hope that one day we will be able to pay it forward. Hopefully in the meantime we can give inspiration to those in similar situations.
We can’t say it enough but thank you again, we love you all!
– Amy, Jon and Parker.
Thank you all so much, your support means everything to us. We love not only sharing updates on Amy, but also showing how your donations are directly impacting us. Living with and recovering from a T.B.I. comes with many challenges. One of the more frustrating and embarrassing for Amy is dealing with loss of bowel and bladder control. She is proud to share that as of mid-June she no longer requires adult diapers, she’s finally able to just use pads for bladder leaks. This was a huge step for her mentally and emotionally. Your $20 donations help cover the cost of the pads and additional feminine products every week. She wants you to know that they are a life saver!
We’d also like to share a video of her working on some speech therapy yesterday. We typically spend about 3-5 hours a day at home working on various therapy techniques. It’s our goal to improve between each therapy session, she feels a sense of pride every time she can show improvement to her therapists.
We have also received a lot positive feedback from our podcast and hope to have another one for you sometime next week. Thank you all again so much, none of this will be possible without you.
⁃ Amy, Jon and Parker
Video of Amy working on her speech
We want to start by saying Amy’s recovery would not be possible without all of the support we have received. Your generosity no matter how large or small has directly affected not only Amy’s progress, but the quality of life for myself and our 9 year old daughter. We are so happy to continue the updates each week that I can afford to be home, this campaign has been the only reason I have been able to provide 24/7 care to Amy and Parker.
She is currently attending rehab twice a week, which is about an hour away from us. To give you an idea on how you are all directly impacting Amy, your $50 donation covers the gas we use to get there and back on a weekly basis. We start therapy days at about 7:00am with some breakfast and much needed coffee. After that it’s time to get Amy dressed, partake in bathroom duties and then it’s on the road. Once at therapy she will typically have 3 sessions of speech, occupational and physical therapy, each an hour long. After that we make the hour drive back home where I can get her bathed and relaxed after a long day (a 5-6 hour day of work for her is similar to a 12+ hour day to us in terms of how much it takes out of her).
Here’s Amy at therapy working on standing. This machine will also allow her to practice taking steps once she’s ready.
In addition to all the hard work Amy puts in, you all have also allowed us to have some really enjoyable moments together.
Here we are playing some music while hanging out with friends. Singing is also a great way for Amy to work on her breathing and speech.
Thank you all again, none of this would be possible without you.
“Alone we can do so little , together we can do so much” – Helen Keller
Today marks 7 months since Amy’s accident sudden life change. Our ames is continuing to battle every day and we are so proud of how much she pushes herself. She’s a true warrior and doesn’t let her bad days slow her down.
Although she is continuing to make improvements she is still in need of full time care. As of this writing she is immobile and unable to transfer herself to/from her wheelchair, unable to change her clothes (although starting to get better at taking off and putting on shirts), unable to fully feed herself and needs help adjusting her positioning when sitting or laying down.
A dear friend of ours Shana started Amy’s GoFundMe to assist with medical and life expenses. Every dollar that has been raised so far allows me (Jon) to stay home and care for her 24/7. We believe she will continue to improve and eventually make a good recovery, however she will still require full time care for the foreseeable future.
It’s never easy to ask for help, especially financial, but assistance will be needed moving forward. We are still in the process of trying to get her approved for disability assistance (7 months and counting) but as of now she’s without it. We ask for your help sharing Amy’s story and GoFundMe link to your family, friends, co-workers and whoever else you can think of.
Thank you again from the bottom of our hearts, we can’t possibly put in to words just how much all of your help means.
ames and Jon